Newborn babies in the UK are currently screened for five disorders at birth. The Expanded Newborn Screening project is working with clinicians, allied health professionals, clinical scientists, health economists and other academics to evaluate whether it would be appropriate to screen for an additional five rare metabolic disorders. To evaluate this we have screened 430,000 […]
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Living with a rare disorder and screening – an introduction
Newborn Screening helps to diagnose babies with rare metabolic disorders in the first few days of life. These conditions can cause serious illness, which can result in death or serious disabilities. Screening offers a window of opportunity to keep these children well, and with support they can live normal lives. This film was made as […]
Working with Insulin, Carbs, Ketones and Exercise for Diabetes – WICKED
Care of young people with type 1 diabetes is complex, and self-care can often deteriorate during adolescence. Poor blood glucose control among young adults reduces quality of life, increases the risk of complications and is a growing pressure on NHS resources. The WICKED course aims to engage young people with their condition and provide them with sustainable behaviours to self-manage their diabetes for life, […]
CLAHRC Diabetes theme – WICKED course (Working with Insulin, Carbs, Ketones, and Exercise to manage Diabetes)
Jenna Allot, film student York University and Sheffield Teaching Hospitals patient, was inspired by her experience of the pilot WICKED education programme (Working with Insulin, Carbs, Ketones and Exercise to manage Diabetes) to write and produce a short film publicising the course for other young people who may wish to attend. With all long-term health […]
‘Nothing About Us Without Us’ Patient and Public Involvement Workshop held on 2nd March 2011 at The Source, Sheffield
Involving patients and members of the public in research can be rewarding not only for the individuals, but also for the research and the researcher. CLAHRC SY encourages all our research projects to include consideration of PPI. PPI can be included in a research project at many levels, whether through PPI input into research proposals, […]
